Families like Etta’s plan every hour around seizures. An emergency bag by the door. Medication alarms punctuating the day. Trips mapped by the nearest hospital. Nights are the hardest - waiting, listening, worrying. This is the devastating reality for many families who are living with Dravet Syndrome - a rare, life-long and life limiting neurological condition which affects one in every 15,0000 babies in the UK. Today we're calling on you to support our 'Love is' campaign and give hope a helping
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Families like Etta’s plan every hour around seizures. An emergency bag by the door. Medication alarms punctuating the day. Trips mapped by the nearest hospital. Nights are the hardest - waiting, listening, worrying. This is the devastating reality for many families who are living with Dravet Syndrome - a rare, life-long and life limiting neurological condition which affects one in every 15,0000 babies in the UK. Today we're calling on you to support our 'Love is' campaign and give hope a helping
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